Things in my life have changed so much since being diagnosed with Fibro, especially within the past year. I look at how limited it and the IH made me and I feel completely blessed to be feeling better. My IH is under control and the fibro has been allowing me more good days than bad (I pray stating that doesn’t jinx me!). I get really frustrated and irritable on those bad days, though. When I’m feeling decent, I tend to push the “yuck” days to the back of my mind in an attempt to hide them forever. It would benefit those closest to me if I could remember a few things…and it wouldn’t hurt for them to keep the stuff in mind, too!
- I still hurt even though I’m having a good day! HELLO…I may be in a fantastic mood, but I’m still in pain. Am I going to tell you that? Nope. I’m in a great mood, why ruin it with pointing out the obvious, especially the negative obvious?
- I must still take my meds. This is a really bad habit of mine. If I’m not in that “OMG, I’m in serious pain and can’t control it” mode, then I forget my meds. I seriously F-O-R-G-E-T. That means in a few days, watch out because I’m going to be in some pretty bad pain and it will be MY fault. I’ll probably blame someone/something else just because I’m grouchy, though. (Last night was a perfect example. I forgot my meds and had a rough time sleeping…not like that’s new, but still…pain kept me awake for quite a while. Very aggravating!)
- I am going to forget things even if I’m feeling good. It’s fibromyalgia. Brain fog exists. I make lists, I lose them. I have 3 calendars…yes, 3 (actually 4, but I forget about the 4th one). My kids know I forget stuff, but still, tell me things they need me to remember. One just can’t seem to remember that I will forget half of the things she needs me to remember. Maybe she has brain fog, too. Wait, nah…she’s just a teenager.
- I am not Wonder Woman…or Super Girl. My house is still not as clean as I want it to be. I get tired from vacuuming. Heck, some days I get tired from showering (that doesn’t include getting dressed and fixing my hair). This includes those good days. Frustrates me to no end. I want to be able to do things like someone without fibro on those good days. Are we not entitled? Sigh…
- Shopping. I want to marathon shop, I mean some serious retail therapy, and not feel like I’m going to completely fall out of my skin at the end of the day. I don’t care if I buy anything or not. I just want to be able to go and enjoy. Heck, it doesn’t have to be shopping…it can be hiking, walking around the park, neighborhood, whatever. It would probably do me some good to remember #4 when it comes to this.
- Making plans and changing them…it still happens. Guess what? I still have Fibromyalgia…it’s not going away. Unpredictable, yes and it really makes me mad. I’m the one with this…this…crap. If people don’t think I feel bad because I have to change things at the last minute, then I’m terribly sorry. This is my life. I’m managing the best I can. Trust me, I’m not canceling on you because I want to. It’s not fun hanging out at home. It’s almost prison-like some days. And no, walking out on the porch doesn’t help.
- I need to remember that I’m a strong person. All of us fighting this invisible illness need to remember this. We. Are. Strong. Even on my great days, I overlook this. I need to make a list of all the things I do, including all of my accomplishments. Maybe then I’d realize that I am a pretty darn strong woman. But, with my luck, I’d lose the list!!
I know this is a really short list of things I wish I could remember about fibro. I know there’s more, just can’t think of them right now…ironic, isn’t it? What do you think needs to be added to the list? Let me know in the comments section!